Donations are now being accepted

I finally went to the bank the other day and opened up the Jack and Hunter Mackay Fund. The information can be found at the top right of the page.

The boys have been doing very well. Hunter is actually acting more like a 2.5 year old then he has ever before. Jack is still being is whiny self but breaks though every now and again and chats our hear off. He gets all excited in the morning when he watching TV while having some breakfast and a show he likes comes on and he will start singing the theme song and mimicking the words though out the show. Our next appointment is not till the end of August sometime. Which reminds me if I don’t here from our surgeon’s secretary then I will have to be calling her to make that appointment. I love that you all are enjoying this blog. Please pass it on to others. The more awareness we can get hopefully the sooner for available treatment.

Thank you for the good thoughts and prayers.


About Alison

Mother of twin boys whom both have morquio syndrome
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