I know some of you may have been wondering when I was going to write this new post on the blog. When I found out the news I couldn’t wait to run home and tell everyone about. But as I was driving home and thinking I wanted to know more of what happened almost nine months ago. So what did I do? I looked to the blog to see what I wrote about Jack’s first 3 month CT scan. I know he had loose screws but how was the bone. I had wrote that both Jack and Hunter’s bones were fusing well. So now here I am wondering if we will have a repeat but will tell you all about the appointment.
Jack’s fusion looks great (sounds familiar). He had a lot of bone and no loose screws. The surgeon was very excited to see the progress and is feeling much more comfortable proceeding with Hunter’s surgery which is slated for May 18th. For Jack we are skipping the next x-ray (he would have had one in about 6 weeks) but the doctor would like to not expose him to the radiation if not really needed and proceed with his 6 month CT scan. Yes we are leaving him in the halo for another 3 months. Better safe then sorry and to help ease the doctor a week ago an article was written by a group of pediatric neurosurgeons in Utah where they used BMP (the bone protein to encourage bone growth), that was also used in Jack, and all the patients were kept in halos for 6 months. The halo doesn’t bother him and it doesn’t bother us. We actually can’t believe it has already been 3 months. Another 3 months will be cake and then 3 months after that Hunter will be out of his. Of course after the halos come off they will be back in collars to help rebuild neck muscle but like we aren’t used to those and they can at least take baths with them on.
So that was the results of our appointment. I try not to be pessimistic but it is hard. If we had never had anything fail or have to be repeated then I would never think other wise. I just need to think positive and hope for everything to continue the way it has been. And call the hospital to get the CT scans mailed to me so I can obese over the images. 😉
Thank you everyone for all the love and support you continue to give our family everyday.